TO HONOUR MY DEAR FRIEND AVRAHAM YEHUDA TERRIS, AND HIS FAMILY, I
AM HOPING TO RAISE FUNDS THROUGH THE SICKKIDS FOUNDATION TO
HELP SUPPORT RESEARCH TOWARDS HUNTER SYNDROME.

Hunter syndrome is a rare genetic disorder in which a child's body becomes unable to break down certain sugar molecules. As these molecules build up in organs and tissues over time, they cause damage that affects physical and mental development. Unfortunately, there is no cure for the syndrome and the average life expectancy is only 13 to 15 years of age. My friend Avraham Yehuda is 13 years old. He has been bravely living with Hunter syndrome since he was diagnosed at age 5. When I first met “A-Y” in the spring of 2020, little did I know the immense impact this strong and courageous boy would have on me. Avraham is spending far too many days and
nights in the hospital right now, supported by amazing doctors and nurses, and by his truly remarkable, resilient and compassionate family.

Although I like to think I have done what I can to support “A-Y” and his family, this pales in comparison to the lessons I have learned from all of them. Specifically, the importance of cherishing each day, finding beauty in the simplest of things, and embracing the strength within us to overcome the challenges we
face. Avraham serves as a reminder that we must continue to advocate for, and financially support, individuals battling rare diseases. His impact on my life has been immeasurable, and it is for this reason that I am committed to ensuring that his lifelong battles and struggles are never forgotten, even celebrated. 

My long-term goal is to help to find a cure for Hunter syndrome and in the near-term to at least make the weekly genetic treatments more bearable.